What es

AELMHU?

We are a non-profit association made up of pharmaceutical companies, specialised in rare diseases, that are committed to discovering, researching, developing and commercialising innovative therapies that improve the lives of patients and their families.

RESEARCH AND COMMITMENT to rare diseases

MEMBERS

Do you want to be part of AELMHU?

What is a orphan drug?

Orphan drugs ( ODM) are innovative treatments, many of them of biotechnological origin, intended to establish a diagnosis, prevent or treat patients with rare or minority diseases for which there is no therapeutic alternative.

AccessReport

AELMHU prepares, on a quarterly and annual basis,
reports on access to orphan drugs in Spain.

Check the latest update

Orphan Drug Annual Access Report 2022

NEWS

NEWS

Orphan Drug Annual Access Report 2022

AELMHU publishes, once again this year, the annual data on access to orphan drugs in Spain in order to monitor the evolution of access to this type of treatment in our country. This ... Read more

AELMHU's contributions to the new public consultation of the Ministry of Health.

AELMHU's contributions to the new public consultation of the Ministry of Health.

Assessments and proposals for access to orphan drugs in Spain.

Assessments and proposals for access to orphan drugs in Spain.

TWITTER

History, current situation and future perspectives of neonatal screening for rare diseases in Spain

ARTICLES

History, current situation and future perspectives of neonatal screening for rare diseases in Spain

History, current situation and future perspectives of neonatal screening for rare diseases in Spain
Interview with Álvaro Hidalgo, President of the Weber Foundation

INTERVIEWS

Interview with Álvaro Hidalgo, President of the Weber Foundation

Interview with Álvaro Hidalgo, President of the Weber Foundation

ASSOCIATED COMPANIES

NEWSLETTER

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  • AELMHU
  • C/ Bárbara de Braganza 2, 2º E 28004 Madrid
  • C/ Muntaner, 292, 1 2ª 2ª.
  • 08021 Barcelona

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AELMHU NEWSLETTER

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This field is a validation field and must remain unchanged.

© 2021
Asociación Española de Laboratorios de Medicamentos Huérfanos y Ultrahuérfanos (Spanish Association of Orphan and Ultra Orphan Drug Laboratories)