What es

AELMHU?

We are a non-profit association made up of pharmaceutical companies, specialised in rare diseases, that are committed to discovering, researching, developing and commercialising innovative therapies that improve the lives of patients and their families.

ASSOCIATED COMPANIES

RESEARCH AND COMMITMENT to rare diseases

MEMBERS

Do you want to be part of AELMHU?

What is a orphan drug?

Orphan drugs ( ODM) are innovative treatments, many of them of biotechnological origin, intended to establish a diagnosis, prevent or treat patients with rare or minority diseases for which there is no therapeutic alternative.

AccessReport

AELMHU prepares, on a quarterly and annual basis,
reports on access to orphan drugs in Spain.

Check the latest update

NEWS

NEWS

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The social value of orphan drugs

With the aim of highlighting the benefits of orphan therapies, not only for patients and their families, but also in economic terms for the health system, the document "Differential aspects of orphan therapies" has been presented in ... Read more

II National Conference on
Advanced Therapies

New call for entries for the
AELMHU Awards

AELMHU renews its Board of Directors

Report on clinical trials
in Spain

AELMHU's contributions to the new public consultation of the Ministry of Health.

AELMHU's contributions to the new public consultation of the Ministry of Health.

Assessments and proposals for access to orphan drugs in Spain.

Assessments and proposals for access to orphan drugs in Spain.

photo RYM

ARTICLES

History, current situation and future perspectives of neonatal screening for rare diseases in Spain

History, current situation and future perspectives of neonatal screening for rare diseases in Spain
interviews-alvaro-Hidalgo

INTERVIEWS

Interview with Álvaro Hidalgo, President of the Weber Foundation

Interview with Álvaro Hidalgo, President of the Weber Foundation

NEWSLETTER

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  • AELMHU
  • C/ Paseo de la Castellana, 135 7ª Planta 28046 Madrid
  • C/ Muntaner, 292, 1 2ª 2ª.
  • 08021 Barcelona

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AELMHU NEWSLETTER

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© 2021
Asociación Española de Laboratorios de Medicamentos Huérfanos y Ultrahuérfanos (Spanish Association of Orphan and Ultra Orphan Drug Laboratories)