What es

AELMHU?

We are a non-profit association made up of pharmaceutical companies, specialised in rare diseases, that are committed to discovering, researching, developing and commercialising innovative therapies that improve the lives of patients and their families.

RESEARCH AND COMMITMENT to rare diseases

MEMBERS

Do you want to be part of AELMHU?

What is a orphan drug?

Orphan drugs ( ODM) are innovative treatments, many of them of biotechnological origin, intended to establish a diagnosis, prevent or treat patients with rare or minority diseases for which there is no therapeutic alternative.

AccessReport

AELMHU prepares, on a quarterly and annual basis,
reports on access to orphan drugs in Spain.

Check the latest update

NEWS

Día Mundial de las Enfermedades Raras en Sevilla

Cada año, la Federación Española de Enfermedades Raras (FEDER) celebra su acto oficial por el Día Mundial de las Enfermedades Raras. Este año, la ciudad elegida para la celebración ha sido Sevilla, la ciudad que … Leer más