Whatis
AELMHU?
We are a non-profit association made up of pharmaceutical companies, specialised in rare diseases, that are committed to discovering, researching, developing and commercialising innovative therapies that improve the lives of patients and their families.
AccessReport
AELMHU prepares, on a quarterly and annual basis,
reports on access to orphan drugs in Spain.
NEWS
NEWS
With the aim of highlighting the benefits of orphan therapies, not only for patients and their families, but also in economic terms for the health system, the document "Differential aspects of orphan therapies" has been presented in ... Read more
AELMHU presents its 2025 Awards to recognize excellence and commitment to rare diseases
AELMHU meets with Ibero-American rare disease patient associations
Report on Clinical Trials for Rare Diseases in 2024
AELMHU at the PERTE for Vanguard Health
INTERVIEWS
INTERVIEWS
NET Spain: a decade of giving voice to patients with neuroendocrine tumors
Familial chylomicronemia: challenges and approach to this rare disease
ASSOCIATED COMPANIES
RESEARCH AND COMMITMENT to rare diseases
MEMBERS
Do you want to be part of AELMHU?
