This morning our director, Marian Corral, participated in the Multidisciplinary Conference on Rare Diseases organized by the Hospital 12 de Octubre in Madrid, in collaboration with Kyowa Kirin. The inauguration of the event was attended by the ... Read more
24-02-2023
AELMHU at the 1st Gene Therapy Forum
AELMHU represented by its executive director, Marian Corral, has participated in the I Gene Therapy Forum organized in Madrid by CSL Benring. During the day, topics related to hemophilia were mainly addressed: ... Read more
23-02-2023
AELMHU in IM Médico's debate on Rare Diseases
AELMHU, represented by its secretary and member, Beatriz Perales, has participated in the debate organized by the journal IM Médico on: 'Rare diseases: more refined diagnoses, more specific treatments'. The event was moderated by ... Read more
15-02-2023
AELMHU participates in the Europe Rare Disease Summit 2023
The president of AELMHU, María José Sánchez Losada, has participated in the Europe Rare Disease Summit 2023 organized in Madrid by Bamberg Health. The international meeting brought together representatives of the administration, the European Union ... Read more
13-02-2023
Assessments and proposals for access to orphan drugs in Spain.
On the occasion of the next World Day for Rare Diseases, on February 28th, AELMHU demands a change of model for the financing of these drugs in Spain. According to the definitive data of the Annual Report ... Read more
26-01-2023
Orphan Drug Annual Access Report 2022
AELMHU publishes, once again this year, the annual data on access to orphan drugs in Spain in order to monitor the evolution of access to this type of treatment in our country. This ... Read more
