The Spanish Association of Orphan and Ultra Orphan Drugs (AELMHU) has announced the celebration of the third edition of the National Conference: The Future of Advanced Therapies for Rare Diseases. This event, for the third ... Read more

We accompanied FEDER to the celebration of its annual event on the occasion of the World Day for Rare Diseases in Oviedo, an event of great importance that, in the presence of H.M. Queen Letizia, ... Read more

As part of the celebration of the World Day for Rare Diseases, held this year in Oviedo, FEDER wanted to give visibility and give prominence to patient associations in Oviedo in a special ... Read more

AELMHU, represented by Beatriz Perales, has participated in the second edition of Únicas Talks, 'Priorities in rare diseases', a meeting organized by the Hospital Sant Joan de Déu and the "la Caixa" Foundation that has ... Read more

The Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU) today presented the results of its Annual Access Report 2024, a comprehensive analysis on the situation of orphan drugs in Europe ... Read more

Our president Beatriz Perales, has participated in the National Conference on Health Management and Rare Diseases, organized by the Spanish Society of Health Managers (Sedisa) and AMGEN, which has highlighted the ... Read more