Once again this year, the Spanish Association of Orphan and Ultra Orphan Drug Laboratories has presented its 2023 awards in Madrid. The ceremony was attended by some exceptional guests: ... Read more
07-11-2023
AELMHU Recommendations to the revision of the EU Pharmaceutical Legislation
Asociación Española de Laboratorios de Medicamentos Huérfanos y Ultrahuérfanos, a non-profit organization that brings together 25 biotechnology and pharmaceutical companies committed to the discovery, research, development and commercialization of orphan and ultra-orphan drug therapies.... Read more
26-10-2023
Difficulties in access for orphan drugs
The Spanish Association of Orphan and Ultra Orphan Drug Laboratories (AELMHU), represented by its director, Marian Corral, has participated one more year in the International Congress on Rare Diseases of the association D'Genes in the ... Read more
25-10-2023
AELMHU's contributions to the RD of Health Technology Assessment.
AELMHU has sent to the Ministry of Health its contributions to the Public Consultation prior to the draft Royal Decree regulating the Health Technology Assessment. From the association we recognize the ... Read more
04-10-2023
Second quarterly report on access to orphan drugs in 2023
The Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU) has published the second Quarterly Report on Orphan Drug Access in Spain in 2023, which analyzes the evolution of orphan drug ... Read more
02-10-2023
Jury decision of the AELMHU 2023 Awards
The Spanish Association of Orphan and Ultraphan Drug Laboratories (AELMHU) has published the jury's decision of the V edition of the AELMHU Awards. These awards have already become a benchmark in the ... Read more
