In observance of World Cushing’s Syndrome Day, celebrated annually on April 8, we interviewed Florina Tudorache Serbanica, 46, a patient with Cushing’s disease, who describes the condition as “an invisible thief” that stole her former life. Here is what she said: “For me, Cushing’s has been like an invisible thief who stole the life I had before the surgery”.

Interview with Dr. Roser Torra, president of the European Renal Association (ERA), head of Clinical Nephrology and coordinator of the Hereditary Kidney Diseases Unit in the Department of Nephrology at the Fundació Puigvert in Barcelona, on the occasion of Fabry Disease Awareness Month.

An interview with Dr. Pilar Rodríguez Ortega, a specialist in endocrinology and nutrition at Juan Ramón Jiménez Hospital, onthe current state and future of lipodystrophies, the importance of early detection, and the need to move toward a more coordinated, equitable, and patient-centered care model.

This Sunday, March 8, isInternational Women's Day. We share the stories of three professionals who are part of the AELMHU Access Working Group and who play key roles in the pharmaceutical industry: María Baquerizo, Country Manager Spain at Avanzanite Bioscience,María Fernández, Director of Market Access and Institutional Relations at Amgen Spain, andSusana Simón, Director of Market Access and Patient Experience atAlexion Pharmaceuticals.

Interview with Juan Carrión, president of FEDER, on the occasion of Rare Disease Day 2026, to address the main needs and challenges faced by the 3.4 million people with rare diseases in Spain.

On the occasion of the celebration of the National Day of Neuromuscular Diseases, we interviewed Manuel Rego and Begoña Martín, president and director of the ASEM Federation, to learn first-hand about the challenges, advances and needs of affected people and their families.

On World Neuroendocrine Tumors Day, we interviewed Blanca Guarás, president of NET Spain, the patient association that accompanies, informs and gives a voice to those who live with this group of tumors.

On the World Day of familial chylomicronemia syndrome, we interviewed an expert in this rare pathology, Dr. Ovidio Muñiz, head of the Lipid and Vascular Risk Unit of the Hospital Virgen del Rocío in Seville.

On the World Day of Epidermolysis Bullosa, better known as butterfly skin, we interviewed Natividad Romero Haro, nurse and coordinator of care and training activities of the DEBRA Butterfly Skin Association.

On International Paroxysmal Nocturnal Hemoglobinuria (PNH) Day, we interviewed Adriana Reyes, president of the Spanish PNH Association, who tells us her personal story and the challenges posed by this rare disease.