INTERVIEWS
Interview with Juan Carrión, president of the Spanish Federation for Rare Diseases (FEDER).
On the occasion of World Rare Disease Day, celebrated on February 28th, Juan Carrión, president of FEDER, tells us first hand about his campaign for this edition 'pERsonas'.
Interview with Isabel María Sarabia, Social Worker of the Association for Rare Diseases D'GENES
We talked to Isabel María Sarabia, social worker of the Rare Diseases Association D'Genes in the framework of the celebration, this January 24, of the International Alagille Syndrome Awareness Day.
Interview with Isabel Motero, director of the Spanish Federation of Rare Diseases (FEDER).
On the occasion of World Depression Day, we talked to Isabel Motero, director of the Spanish Federation of Rare Diseases (FEDER), to tell us from her experience, the importance of mental health in patients with minority pathologies.
Interview with Dr. Jorge Francisco Gómez Cerezo, Chief of the Internal Medicine Department at the Infanta Sofía University Hospital and Coordinator of the Minority Diseases Group of the Spanish Society of Internal Medicine (SEMI).
On the occasion of World Doctors' Day, we spoke with Dr. Gómez Cerezo, head of the Internal Medicine Department at the Infanta Sofía University Hospital and Coordinator of the Minority Diseases Group of the Spanish Society of Internal Medicine (SEMI), one of the key figures in the field of rare diseases in our country.
Interview with Jordi Cruz, director of MPS Lisosomales, and Dr. Álvaro Hermida, clinician specialized in this type of pathologies.
On the occasion of World Alpha Mannosidosis Day, we spoke with Jordi Cruz, director of MPS Lisosomales, and Dr. Álvaro Hermida, a clinician specialized in this type of rare pathologies.
Interview with Rosa Perez, president of the Spanish Association against familial chylomicronemia and patient of this rare disease.
On the occasion of the World Day of Familial Chylomicronemia Syndrome (FQS) we spoke with Rosa Perez, president of the Spanish Association against Familial Chylomicronemia and patient of this rare disease.
Interview with Sonia Fernandez, president of the Spanish Association of Inherited Rickets and Osteomalacia Patients Association (AERYOH).
Coinciding with the World Day of X-linked hypophosphatemia, we talked to Sonia Fernandez, patient of this same pathology and current president of the Patients Association Spanish Association of Inherited Rickets and Osteomalacia (AERYOH), to tell us, first hand, what this rare pathology involves and what it means to live with it.
Interview with Dr. Montserrat Morales, Coordinator of the Adult Unit for Rare Diseases and Inborn Errors of Metabolism at the Hospital Universitario 12 de Octubre in Madrid.
On the occasion of World ASMD Awareness Day, we spoke with Dr. Montserrat Morales, Coordinator of the Adult Unit for Rare Diseases and Inborn Errors of Metabolism at the Hospital Universitario 12 de Octubre in Madrid, to hear from a clinical point of view what it means to suffer from this pathology.
Interview with Dr. Begoña Polo, medical expert in Familial Intrahepatic Cholestasis.
We spoke with Dr. Begoña Polo, from the pediatric gastroenterology and hepatology department of La Fe Hospital in Valencia, on the occasion of World Familial Intrahepatic Cholestasis Day, to understand what it means to live with this rare disease.
Interview with Dr. Torralba and Marisol Prieto, clinician and Gaucher patient, respectively.
On the occasion of World Gaucher Disease Day, we interviewed Dr. Miguel Ángel Torralba, expert in this lysosomal pathology, and Marisol Prieto, patient and president of the Spanish Association of Patients and Relatives of Gaucher Disease (AEEFEG).
