INTERVIEWS
Interview with Jorge Mestre-Ferrándiz, first author of the article "Analysis of the evolution of access to orphan drugs in Spain".
"Just over half of the orphan drugs authorised by the EMA are available in Spain".
Interview with María Teresa Martínez Ros, Director General of Planning, Research, Pharmacy and Citizen Services of the Region of Murcia.
"The Comprehensive Plan for Rare Diseases in the Region of Murcia is a choral plan".
Interview with Francesc Palau, Director of the Paediatric Institute for Rare Diseases at the Hospital Sant Joan de Déu in Barcelona
"No diagnosis doesn't mean we can't help the patient".
Interview with María José Sánchez Losada, Managing Director of Csl Benring
Partner of AELMHU
Interview with Mónica López, coordinator of the SEMI's Minorities Group
"We coordinate care for patients with rare diseases as they reach adulthood".
Interview with Dr. Miguel García Ribes, coordinator of the semFYC Working Group on Clinical Genetics and Rare Diseases.
"Rare disease patients must receive the same care as any other chronic patient in our healthcare system".
Interview with Dr. Antonio Fontaellas Romá
Researcher at the Centre for Applied Medical Research at the University of Navarra
Interview with Dr. Joan Albert Barberá Mir
Head of the Pneumology and Respiratory Allergy Department. Hospital Clinic de Barcelona. Coordinator of the CIBERES Pulmonary Hypertension Research Line.
Interview with Prof. Margarita Ugarte Pérez
Director of the Centre for the Diagnosis of Molecular Diseases at the Autonomous University of Madrid ...
Interview with Miguel Ángel Ruiz Carabias. Director of the Association for Rare Diseases D'Genes
Director of the Association for Rare Diseases D'Genes.
