La Asociación Española de Laboratorios de Medicamentos Huérfanos y Ultrahuérfanos, se ha reunido con Marina Pollán, la nueva directora del Instituto de Salud Carlos III. Durante el encuentro, el vicepresidente de la asociación, Jose Luis ... Leer más

El evento «Desafíos de la evaluación económica en la próxima década» organizado por BioInnova Consulting, en colaboración con Almirall, AstraZeneca, Chiesi, Lilly, Regeneron y Takeda, celebrado en la Academia Nacional de Medicina Española, contó ayer ... Leer más

The Spanish Association of Orphan and Ultra Orphan Drug Laboratories (AELMHU) has sent to the Ministry of Health its contributions to the Public Consultation prior to the draft Royal Decree that establishes the Portfolio of Orphan and Ultra Orphan ... Read more

AELMHU has sent to the Community of Madrid its contributions to the Public Consultation prior to the draft Royal Decree regulating early care in the Community of Madrid. The ... Read more

As a closing of the regional events of the World Rare Disease Day, the Assembly of Madrid has hosted today, Wednesday, March 20, a day together with the Spanish Federation of Rare Diseases (Federación Española de Enfermedades Raras ... Read more

Every year, the Spanish Federation of Rare Diseases (FEDER) celebrates its official event for World Rare Disease Day. This year, the city chosen for the celebration was Seville, the city that ... Read more