NEWS

NP Training on Rare Diseases-ANIS-AELMHU
25-06-2025

ANIS and AELMHU promote training for journalists on orphan drugs and rare diseases

The National Association of Health Informers (ANIS) and the Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU) have organized this Wednesday the II Training Day on rare diseases, aimed at journalists ... Read more
1st Quarterly Report on Access 2025
25-06-2025

First Quarterly Access Report 2025

The Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU) has published its Report on Access to Orphan Drugs in Spain for the first four months of 2025, with data through April 30. ... Read more
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20-05-2025

Report on Clinical Trials in Spain for 2025

As part of the International Clinical Trials Day, which is celebrated every May 20, the Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU) has presented its Clinical Trials Report for ... Read more
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12-05-2025

Innovation to boost orphan drugs

The president of AELMHU, Beatriz Perales has participated in the event "Compass of European competitiveness and its impact on the Spanish healthcare ecosystem", organized by LEVIN Public Health Affairs. The event brought together ... Read more
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28-04-2025

Ensuring access to one-shot therapies for rare diseases

The Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU), through its executive director, Marian Corral, has participated in the event Towards a Long-term Strategy for "One-shot" Therapies in Spain, organized by ... Read more
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24-04-2025

AELMHU at the PERTE for Vanguard Health

The Spanish Association of Orphan and Ultra Orphan Drug Laboratories (AELMHU) has been incorporated as an active member in the PERTE Alliance (Strategic Project for Economic Recovery and Transformation), together with representatives of the Spanish pharmaceutical ... Read more