NEWS

AELMHU publishes new annual report on orphan drugs
24-01-2024

AELMHU publishes new annual report on orphan drugs

The Spanish Association of Orphan and Ultra Orphan Drug Laboratories (AELMHU) publishes the results of its Access Report 2023 in which it highlights how for the first time in the last 5 years, Spain is funding ... Read more
AELMHU 2023 Awards Ceremony
08-11-2023

AELMHU 2023 Awards Ceremony

Once again this year, the Spanish Association of Orphan and Ultra Orphan Drug Laboratories has presented its 2023 awards in Madrid. The ceremony was attended by some exceptional guests: ... Read more
AELMHU Recommendations to the revision of the EU Pharmaceutical Legislation
07-11-2023

AELMHU Recommendations to the revision of the EU Pharmaceutical Legislation

Asociación Española de Laboratorios de Medicamentos Huérfanos y Ultrahuérfanos, a non-profit organization that brings together 25 biotechnology and pharmaceutical companies committed to the discovery, research, development and commercialization of orphan and ultra-orphan drug therapies.... Read more
Difficulties in access for orphan drugs
26-10-2023

Difficulties in access for orphan drugs

The Spanish Association of Orphan and Ultra Orphan Drug Laboratories (AELMHU), represented by its director, Marian Corral, has participated one more year in the International Congress on Rare Diseases of the association D'Genes in the ... Read more
AELMHU's contributions to the RD of Health Technology Assessment.
25-10-2023

AELMHU's contributions to the RD of Health Technology Assessment.

AELMHU has sent to the Ministry of Health its contributions to the Public Consultation prior to the draft Royal Decree regulating the Health Technology Assessment. From the association we recognize the ... Read more
Second quarterly report on access to orphan drugs in 2023
04-10-2023

Second quarterly report on access to orphan drugs in 2023

The Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU) has published the second Quarterly Report on Orphan Drug Access in Spain in 2023, which analyzes the evolution of orphan drug ... Read more