Today, the Spanish Association of Orphan and Ultra Orphan Drug Laboratories (AELMHU) held the II National Conference "The Future of Advanced Therapies in Rare Diseases" in the Auditorium of the University Camilo José José ... Read more

The Spanish Association of Orphan and Ultra Orphan Drugs was able to visit the Hospital Sant Joan de Déu and the Casa de Sofia to learn first-hand about the SJD Únicas project, an essential component of the ... Read more

The Spanish Association of Orphan and Ultra Orphan Drugs (AELMHU) has announced the celebration of the II National Conference: The Future of Advanced Therapies in Rare Diseases. This event, sponsored by BioMarin, CSL Behring, Novartis, ... Read more

With the aim of highlighting the benefits of orphan therapies, not only for patients and their families, but also in economic terms for the healthcare system, the document "Differential aspects of orphan therapies" was presented at the ... Read more

The Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU) has published its first Quarterly Report on Access to Orphan Drugs in Spain, which analyzes the situation of orphan drug products in Spain and the ... Read more

The Spanish Association of Orphan and Ultra Orphan Drug Laboratories (AELMHU) has appointed Beatriz Perales as the new president of the Association, replacing María José Sánchez, who will continue to serve on the Board ... Read more