NEWS

We attended the Institutional Act of FEDER in the Assembly of Madrid.
20-03-2024

We attended the Institutional Act of FEDER in the Assembly of Madrid.

As a closing of the regional events of the World Rare Disease Day, the Assembly of Madrid has hosted today, Wednesday, March 20, a day together with the Spanish Federation of Rare Diseases (Federación Española de Enfermedades Raras ... Read more
World Rare Disease Day Event in Seville
05-03-2024

World Rare Disease Day Event in Seville

Every year, the Spanish Federation of Rare Diseases (FEDER) celebrates its official event for World Rare Disease Day. This year, the city chosen for the celebration was Seville, the city that ... Read more
AELMHU participates in the Conference on Minority Diseases at Hospital 12 de Octubre
29-02-2024

AELMHU participates in the Conference on Minority Diseases at Hospital 12 de Octubre

Our president, Maria Jose Sanchez Losada, has participated in the II Conference on Minority Diseases organized by the Hospital Universitario 12 de Octubre in Madrid on the occasion of the celebration of the World Day of ... Read more
We attended the laying of the foundation stone of the ÚNICAS building
29-02-2024

We attended the laying of the foundation stone of the ÚNICAS building

As part of this year's World Day for Rare Diseases, our director, Marian Corral, visited the Hospital Sant Joan de Déu Barcelona to attend the event of the laying of the first stone ... Read more
Presentation in the Senate of the document 'Coordinates in Rare Diseases'.
27-02-2024

Presentation in the Senate of the document 'Coordinates in Rare Diseases'.

AELMHU, represented by Sergio Bullón, member of the Board of Directors, has participated in the event organized by Sobi and Bioinnova Consulting in the Senate to present the document "Coordinates in Rare Diseases". This project is ... Read more
Launching of FEDER's campaign for World Rare Disease Day
22-02-2024

Launching of FEDER's campaign for World Rare Disease Day

Today AELMHU has attended the presentation of the FEDER campaign 'In rare diseases, prevention is better than cure?' framed in the World Day for Rare Diseases to be celebrated next 29th of ... Read more