Los medios de comunicación, aliados clave para visibilizar las enfermedades raras
La Asociación Nacional de Informadores de la Salud (ANIS) y la Asociación Española de Laboratorios de Medicamentos Huérfanos y Ultrahuérfanos (AELMHU) han organizado este jueves una nueva edición de la Jornada de Formación para Periodistas ... Leer más
17-06-2026
Primer Informe Cuatrimestral de Acceso 2026
La Asociación Española de Laboratorios de Medicamentos Huérfanos y Ultrahuérfanos (AELMHU) ha publicado su Informe sobre el Acceso a Medicamentos Huérfanos en España correspondiente al primer cuatrimestre de 2026, con datos hasta el 30 de abril. Esta publicación, ... Leer más
June 4, 2026
AELMHU Participates in the Third Edition of Únicas Talks
Beatriz Perales, president of the Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU), participated this Thursday in the third edition of Únicas Talks, a conference organized by Sant Joan Hospital ... Read more
May 29, 2026
AELMHU at SEDISA's 'Spain Global Rare Diseases Summit'
Marian Corral, director of the Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU), participated this Friday in the “Spain Global Rare Diseases Summit,” organized by the Spanish Society of Executives ... Read more
May 27, 2026
AELMHU has appointed a new Board of Directors for the next two years
The General Assembly of the Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU), comprising its 29 member companies, elected the Association’s new Board of Directors on Wednesday for the term ... Read more
May 19, 2026
Report on Clinical Trials for Rare Diseases in Spain 2025
The Spanish Association of Laboratories for Orphan and Ultra-Orphan Drugs (AELMHU) has published the “Report on Clinical Trials for Rare Diseases in Spain 2025,” which analyzes the most relevant data on authorized clinical trials ... Read more
