AELMHU Participates in the 19th International Congress on Rare Diseases
AELMHU participated in the 19th International Congress on Rare Diseases, organized by the D’Genes Association and the Catholic University of Murcia. Under the theme “Walking Together, Building the Future,” the event brought together ... Read more
October 27, 2026
AELMHU Recognizes the Work of Those Driving Progress in Rare Diseases
The Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU) has presented the 8th edition of its annual awards, which recognize the most outstanding contributions by institutions, patient associations ... Read more
October 20, 2026
AELMHU calls for rare diseases and orphan drugs to be made a priority in the next legislative session
The Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU) has presented ten proposals to improve access to orphan and ultra-orphan drugs, promote research, and strengthen innovation and competitiveness in ... Read more
October 19, 2026
AELMHU Publishes Its Second Quarterly Report on Access to Orphan Drugs 2026
The Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU) has published its Report on Access to Orphan Drugs in Spain for the second four-month period of 2026, with data updated through the 31st ... Read more
October 7, 2026
AELMHU and the Platform of Patient Organizations Join Forces to Promote Innovation and Patient Participation in Health Care Decisions
The Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU) and the Platform of Patient Organizations (POP) have signed a framework agreement for collaboration to advance joint initiatives aimed at improving ... Read more
October 6, 2026
AELMHU Participates in the 7th Symposium of EL ESPAÑOL's Health Observatory
AELMHU participated in the 7th Symposium of EL ESPAÑOL’s Health Observatory, held in Madrid from October 5 to 8 under the title “Healthcare 2030: From Diagnosis...” Read more
