FEDER and AELMHU renew their collaboration agreement
The Spanish Federation for Rare Diseases (FEDER) and the Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU) have renewed their framework collaboration agreement, reaffirming their joint commitment to improving the lives, ... Read more
January 31, 2026
AELMHU attends the presentation of the Andalusian Plan for Rare Diseases
The Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU), represented by its director, Marian Corral, attended the presentation of the Care Plan for People Affected by Rare Diseases in ... Read more
January 26, 2026
AELMHU, at the Second Meeting of the CSIC Rare Diseases Network
The Spanish Association for Orphan and Ultra-Orphan Drugs (AELMHU) participated on Monday in the Second Meeting of the Rare Diseases Network of the Spanish National Research Council (CSIC), which was held in ... Read more
January 26, 2026
Annual Report on Access to Orphan Drugs in Spain 2025
Spain financed a total of 20 orphan drugs for rare diseases in 2025, three more than the previous year, according to the results of the Annual Report on Access to Orphan Drugs ... Read more
January 14, 2026
AELMHU celebrates 15 years of commitment to people with rare diseases
The Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU) celebrates its 15th anniversary today, a milestone that reaffirms the commitment of pharmaceutical companies dedicated to researching and developing treatments for ... Read more
20-11-2025
AELMHU in the XVIII International Congress on Rare Diseases
The Spanish Association of Orphan and Ultra Orphan Drugs (AELMHU) has participated this Thursday in the XVIII International Congress on Rare Diseases of the D'Genes Association, which is being held in Murcia. In her speech, the ... Read more
