INTERVIEWS
Interview with Carmen Laborda. Psychologist at FEDER-Madrid
"Each disease has its specificity, but there are a number of needs that they all share".
Interview with Encarna Guillén, head of the Clinical Genetics and Rare Diseases research group at the Hospital Clínico Universitario Virgen de la Arrixaca (Murcia, Spain).
"Genetic counselling is going to be a fundamental prevention tool in rare diseases".
Interview with Julián Isla, Director of Research at the European Federation for Dravet Syndrome
"The main asset of patient groups is the knowledge they have of their disease and their data".
Interview Sergio Teixeira, Biogen CEO
Partner of AELMHU
Interview with Giuseppe Chiericatti, General Manager of Chiesi in Spain
Partner of AELMHU
Interview with Professor Manel Esteller, Director of the Epigenetics and Cancer Biology Programme at the Bellvitge Biomedical Research Institute (IDIBELL).
"One in four rare diseases has alterations in an epigenetic gene".
Interview with Juan Carrión Tudela, President of the Spanish Federation for Rare Diseases (FEDER)
"Research is our hope, it is the future".
Interview with Dr. Miguel Ángel Calleja, president of the Spanish Society of Hospital Pharmacy (SEFH)
"Once research has been boosted, we must ensure that patients have access to medicines".
Interview with Dr. Josep Torrent-Farnell, member of the European Medicines Agency's Committee for Orphan Medicinal Products
"The target for 2020 is to have 200 drugs approved, and we are confident that we will achieve it.
Interview with Dr. Manuel Posada, Director of the Institute for Research on Rare Diseases (IIER)
"Thanks to the Register, professionals will be able to go to a single place to evaluate epidemiological information and also the limitations of its application.
