INTERVIEWS
Interview with Naca Pérez de Tudela (AELIP) and Dr. David Araújo-Vilar, physician specialized in lipodystrophies.
On the occasion of World Lipodystrophy Day, we talked to Naca Pérez De Tudela Cánovas, president of the International Association of Relatives and People Affected by Lipodystrophies (AELIP), and the endocrinologist David Araújo-Vilar, a physician specialized in this field, to tell us what these low prevalence diseases are and the importance of patient associations in addressing them.
Interview with the spokeswomen of the AELMHU working groups.
In the framework of the International Women's Day to be celebrated tomorrow, March 8, we want to give visibility to the female talent in the pharmaceutical industry and more specifically, to the female talent in the Spanish Association of Orphan and Ultra Orphan Drug Laboratories (AELMHU).
Interview with Juan Carrión, president of the Spanish Federation for Rare Diseases (FEDER).
On the occasion of World Rare Disease Day, celebrated on February 28th, Juan Carrión, president of FEDER, tells us first hand about his campaign for this edition 'pERsonas'.
Interview with Isabel María Sarabia, Social Worker of the Association for Rare Diseases D'GENES
We talked to Isabel María Sarabia, social worker of the Rare Diseases Association D'Genes in the framework of the celebration, this January 24, of the International Alagille Syndrome Awareness Day.
Interview with Isabel Motero, director of the Spanish Federation of Rare Diseases (FEDER).
On the occasion of World Depression Day, we talked to Isabel Motero, director of the Spanish Federation of Rare Diseases (FEDER), to tell us from her experience, the importance of mental health in patients with minority pathologies.
Interview with Dr. Jorge Francisco Gómez Cerezo, Chief of the Internal Medicine Department at the Infanta Sofía University Hospital and Coordinator of the Minority Diseases Group of the Spanish Society of Internal Medicine (SEMI).
On the occasion of World Doctors' Day, we spoke with Dr. Gómez Cerezo, head of the Internal Medicine Department at the Infanta Sofía University Hospital and Coordinator of the Minority Diseases Group of the Spanish Society of Internal Medicine (SEMI), one of the key figures in the field of rare diseases in our country.
Interview with Jordi Cruz, director of MPS Lisosomales, and Dr. Álvaro Hermida, clinician specialized in this type of pathologies.
On the occasion of World Alpha Mannosidosis Day, we spoke with Jordi Cruz, director of MPS Lisosomales, and Dr. Álvaro Hermida, a clinician specialized in this type of rare pathologies.
Interview with Rosa Perez, president of the Spanish Association against familial chylomicronemia and patient of this rare disease.
On the occasion of the World Day of Familial Chylomicronemia Syndrome (FQS) we spoke with Rosa Perez, president of the Spanish Association against Familial Chylomicronemia and patient of this rare disease.
Interview with Sonia Fernandez, president of the Spanish Association of Inherited Rickets and Osteomalacia Patients Association (AERYOH).
Coinciding with the World Day of X-linked hypophosphatemia, we talked to Sonia Fernandez, patient of this same pathology and current president of the Patients Association Spanish Association of Inherited Rickets and Osteomalacia (AERYOH), to tell us, first hand, what this rare pathology involves and what it means to live with it.
Interview with Dr. Montserrat Morales, Coordinator of the Adult Unit for Rare Diseases and Inborn Errors of Metabolism at the Hospital Universitario 12 de Octubre in Madrid.
On the occasion of World ASMD Awareness Day, we spoke with Dr. Montserrat Morales, Coordinator of the Adult Unit for Rare Diseases and Inborn Errors of Metabolism at the Hospital Universitario 12 de Octubre in Madrid, to hear from a clinical point of view what it means to suffer from this pathology.
