On the occasion of World Fibrodysplasia Ossificans Progressiva (FOP) Day , we spoke with Patricia Marín, secretary of the Spanish Association of Fibrodysplasia Ossificans Progressiva(AEFOP), Sonia Las Heras, president of the Association and Alejandro, her son, a patient, along with Patricia, of this rare pathology. In addition to their voice, the more clinical testimony of Javier Bachiller, a rheumatologist at the Ramón y Cajal Hospital in Madrid, was added.