ARTICLES Review articles
01-2018
Rare Disease Reference Centres. What they are and how they work
Roser Torra

"Rare diseases are poorly understood by a large part of the healthcare workforce, which greatly delays their diagnosis and leads to inequities in their management. For these reasons, European, Spanish and regional health policies are directing their efforts to improve the care of these pathologies through the creation of centres of reference".

Rare Disease Reference Centres. What they are and how they work