Our director has participated in the second meeting of the Roadmap for Rare Diseases where the progress, achievements and challenges in the approach to Rare Diseases for the year 2023 have been discussed and shared.
At the meeting, Marian Corral, was able to provide some keys to improve access from the point of view of research and laboratories and what is expected for the year 2023. A year that will be marked, among other issues, by regional and national elections, national legislative changes in healthcare (such as the reform of the Law on Guarantees and Rational Use of Medicines), the new European Pharmaceutical Strategy and Spain's Presidency of the Council of the European Union from July 1 to December 31, 2023.
The event began with the words of Carmen Gonzalez, head of Public Affairs and Patient Advocacy at Takeda. Carlos Jiménez Contreras, President of the Spanish Association of Primary Immune Deficiencies, then presented the main points addressed by the strategy.
The following people took part in the subsequent debate: Jorge Aboal Viñas, General Director of Health Care of the Galician Health Service, Carolina Rodriguez Gay, Head of the Patient Information and Care Area of the Health Department of the Community of Madrid, Cristina Ruiz, Deputy General Director of Planning and Care Organization of the Ministry of Universal Health and Public Health of the Community of Valencia, Dr. Luis Aldamiz, from the Health Research Institute of Santiago de Compostela, Isabel Pineros, Director of the Access Department of Farmaindustria, Daniel De Vicente, member of the Board of Directors of FEDER, and our Executive Director. Luis Aldamiz, from the Institute of Health Research of Santiago de Compostela, Isabel Pineros, Director of the Access Department of Farmaindustria, Daniel De Vicente, member of the Board of Directors of FEDER and our Executive Director. The event was closed by Christina Gabriel, Director of Takeda's Rare Metabolic Diseases Unit.