The Spanish Association of Orphan and Ultraphan Drugs we had the honor to close the day '饾棙饾椆 饾棾饾槀饾榿饾槀饾椏饾椉 饾棻饾棽饾椆 饾棶饾棸饾棸饾棽饾榾饾椉 饾棶 饾椆饾椉饾榾 饾椇饾棽饾棻饾椂饾棸饾棶饾椇饾棽饾椈饾榿饾椉饾榾 饾椀饾槀茅饾椏饾棾饾棶饾椈饾椉饾榾: '饾椀饾槀饾椇饾棶饾椈饾椂饾槆饾棶饾椈饾棻饾椉 饾椆饾棶饾榾 饾棽饾椈饾棾饾棽饾椏饾椇饾棽饾棻饾棶饾棻饾棽饾榾 饾椏饾棶饾椏饾棶饾棶饾棶饾榾' at the Cervantes Institute Headquarters in Madrid.
In this event, coordinated by the Te贸filo Hernando Foundation (FHT) as Administrative and Technical Secretary of the event, and co-sponsored by Laboratorios Sobi and Laboratorios Chiesi, explored key aspects of rare diseases, such as access to drugs to treat these diseases and the human impact they have on people.
It has been our director, Marian Corral, who has represented AELMHU to close the day and to move that We are facing a decisive moment for the pharmaceutical sector where innovation is experiencing significant progress. We are in full reform of the pharmaceutical sector, due to the important legislative reforms that are being carried out at European, national and regional level, and we are beginning to see the results of all the research that the industry has been doing for years.
For this reason, it is essential that all parties involved redouble their efforts. It is by working together that patients will be able to benefit from the new treatments that are about to arrive, and they will be able to do so as soon as possible.
In this context, various experts in the field have made presentations and will participate in discussion spaces set up for the attendees. The first block of the event was called The Future of Access to Orphan Drugs, with the participation of Marta Trapero, Professor and researcher at the Department of Economics and Business at the University of Lleida; Gloria Palomo, Preclinical Evaluator of Advanced Therapies and Vaccines (AEMPS) Member for Spain of the COMP; and Antoni Gilabert Perramon, Director of Innovation and Partnership Area, Consorci de Salut i Social de Catalunya.
The second block was attended by M贸nica Rodr铆guez, representative of FEDER, Julio Zarco Rodr铆guez, Managing Director of the Hospital Infantil Universitario Ni帽o Jes煤s and President of the Humans Foundation, and Concepci贸n Mart铆nez, from the Hospital Pharmacy, Hospital U. Infanta Sof铆a.
