The National Association of Health Informers (ANIS) and the Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU), the Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU) have organized this Wednesday the II Training Day on rare diseases, aimed at journalists specialized in health.

At the event, AELMHU's vice president, María José Sánchez, presented to journalists the data from the first 2025 Orphan Drug Access Quarterly Report, which analyzes the access situation for trade-name products with current orphan designation as of April 30, 2025.

Access the full press release here