The Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU) and the Platform of Patient Organizations (POP) have signed a framework agreement for collaboration to advance joint initiatives aimed at improving access to innovation, contributing to the sustainability of the healthcare system, and promoting patient participation in healthcare decision-making.

The agreement establishes a framework for collaboration between the two entities to identify common interests, coordinate joint actions, and optimize efforts that help address the main challenges facing the healthcare system. These include access to orphan and ultra-orphan drugs, advanced therapies, the evaluation of innovation, the generation of evidence, and the reduction of inequalities in healthcare.

Access the full press release here.