Interview with Dr. Antonio Fontaellas Romá

Researcher at the Centre for Applied Medical Research at the University of Navarra

Antonio Fontaellas Romá

Interview with Dr. Joan Albert Barberá Mir

Head of the Pneumology and Respiratory Allergy Department. Hospital Clinic de Barcelona. Coordinator of the CIBERES Pulmonary Hypertension Research Line.

Joan Albert Barberá Mir

Interview with Prof. Margarita Ugarte Pérez

Director of the Centre for the Diagnosis of Molecular Diseases at the Autonomous University of Madrid ...

Prof. Margarita Ugarte Pérez

Interview with Miguel Ángel Ruiz Carabias. Director of the Association for Rare Diseases D'Genes

Director of the Association for Rare Diseases D'Genes.

Miguel Ángel Ruiz Carabias

Interview with Aitor Aparicio García, Managing Director of the State Reference Centre for the Care of People with Rare Diseases and their Families (CREER)

"Our fundamental objective is to improve the quality of life of people affected by rare diseases and their families".

Aitor aparicio

Interview Umberto Stefanutti, Managing Director of Vertex Pharmaceuticals

Partner of AELMHU

Umberto Stefanutti

Interview with Carmen Laborda. Psychologist at FEDER-Madrid

"Each disease has its specificity, but there are a number of needs that they all share".

carmen laborda

Interview with Encarna Guillén, head of the Clinical Genetics and Rare Diseases research group at the Hospital Clínico Universitario Virgen de la Arrixaca (Murcia, Spain).

"Genetic counselling is going to be a fundamental prevention tool in rare diseases".

Encarna Guillén

Interview with Julián Isla, Director of Research at the European Federation for Dravet Syndrome

"The main asset of patient groups is the knowledge they have of their disease and their data".

Julián Isla

Interview Sergio Teixeira, Biogen CEO

Partner of AELMHU

Sergio Teixeira