INTERVIEWS
Interview with Dr. Torralba and Marisol Prieto, clinician and Gaucher patient, respectively.
On the occasion of World Gaucher Disease Day, we interviewed Dr. Miguel Ángel Torralba, expert in this lysosomal pathology, and Marisol Prieto, patient and president of the Spanish Association of Patients and Relatives of Gaucher Disease (AEEFEG).
Interview with Dr. Cristina Pascual, president of the Spanish Group of Immune Thrombocytopenia (GEPTI).
We spoke with Dr. Cristina Pascual, president of the Spanish Immune Thrombocytopenia Group (GEPTI), a working group of the Spanish Society of Hematology and Hemotherapy (SEHH) and hematologist at the Hospital General Universitario Gregorio Marañón, who gives us a detailed view of what it means to live with ITP.
Interview with Cristina Pascual, expert in hematological diseases and treasurer of the Spanish group of Apheresis (GEA).
We interviewed Cristina Pascual, expert in hematological diseases and treasurer of the Spanish Group of Apheresis (GEA), a working group under the Spanish Society of Blood Transfusion and Cell Therapy and the Spanish Society of Hematology and Hemotherapy (SEHH) on the occasion of World Acquired Thrombotic Thrombocytopenic Purpura Day, known as PTTA.
Interview with Peter Löffelhardt MPN, President of MPN Spain
We interviewed Peter Löffelhardt, patient of polycythemia vera and president of the Asociación de Afectados por Neoplasias Mieloproliferativas MPN, MPN Spain, on the occasion of the International Day of Myeloproliferative Neoplasms (MPN), which is celebrated this Thursday, September 12.
Interview with Elena Arcega, president of Albi España
"As part of World Primary Biliary Cholangitis (PBC) Day, we spoke with the president of the Albi Spain Patients' Association, Elena Arcega."
Interview with Álvaro Hidalgo, President of the Weber Foundation
"A more holistic economic evaluation of orphan drugs is needed" Álvaro Hidalgo. Professor of Fundamentals of Economic Analysis. Faculty of Legal and Social Sciences, University of Castilla-La Mancha. President of the Weber Foundation.
Interview with Beatriz Muñoz Cabello, coordinator of the Andalusian Plan for the Care of People Affected by Rare Diseases (PAPER)
"It is important to find the balance between early access, safety and treatment outcomes".
Interview with Enrique Galán Gómez, co-author of the Comprehensive Plan for Rare Diseases in Extremadura 2019-2023.
"We currently have no patient who cannot be treated".
Interview with Lara Albacete Rosado. Social researcher. OBSER (FEDER)
"OBSER's mission is to generate and share information to improve education, awareness and empowerment of families affected by rare diseases".
Interview with Jorge Mestre-Ferrándiz, first author of the article "Analysis of the evolution of access to orphan drugs in Spain".
"Just over half of the orphan drugs authorised by the EMA are available in Spain".
