What es

AELMHU?

We are a non-profit association made up of pharmaceutical companies, specialised in rare diseases, that are committed to discovering, researching, developing and commercialising innovative therapies that improve the lives of patients and their families.

RESEARCH AND COMMITMENT to rare diseases

MEMBERS

Do you want to be part of AELMHU?

What is a orphan drug?

Orphan drugs ( ODM) are innovative treatments, many of them of biotechnological origin, intended to establish a diagnosis, prevent or treat patients with rare or minority diseases for which there is no therapeutic alternative.

AccessReport

AELMHU prepares, on a quarterly and annual basis,
reports on access to orphan drugs in Spain.

Check the latest update

NEWS

NEWS

Imagen-para-web-seccion-premios
La Asociación Española de Laboratorios de Medicamentos Huérfanos y Ultrahúerfanos (AELMHU) ha convocado una nueva edición de sus premios, a través de los cuales quiere reconocer el gran trabajo que profesionales clínicos, investigadores, asociaciones, empresas, … Leer más

Reunión con el
Instituto de Salud Carlos

Próximos desafíos de la
evaluación económica

FEDER en la
Asamblea de Madrid

Enfermedades Minoritarias en el
Hospital 12 de Octubre

AELMHU's contributions to the new public consultation of the Ministry of Health.

AELMHU's contributions to the new public consultation of the Ministry of Health.

Assessments and proposals for access to orphan drugs in Spain.

Assessments and proposals for access to orphan drugs in Spain.

foto RYM
entrevistas-alvaro-Hidalgo

ASSOCIATED COMPANIES