NEWS

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II National Conference on Advanced Therapies

The Spanish Association of Orphan and Ultra-Orphan Drugs (AELMHU) has announced the celebration of the II National Conference: The Future of Advanced Therapies in Rare Diseases. This event, sponsored by BioMarin, CSL Behring, Novartis, PTC Therapeutics, Ultragenyx and Vertex, is supported by BioInnova Consulting as technical secretariat.

Event details:

  • Date: Tuesday, July 9, 2024
  • Time: 9:30h
  • Classroom: Camilo José Cela University Auditorium, Almagro Campus (Calle Almagro 5, 28010, Madrid).
  • Streaming: The link will be provided in the days prior to the meeting on the AELMHU YouTube channel.
  • Format: Hybrid with limited places
    • Registration: Through the form available here.
    • Agenda: The real-time update of the participants' agenda can be viewed here.

Objective of the Event

The main objective of this conference is to promote dialogue and critical reflection among the different actors in the healthcare ecosystem to highlight the arrival of Advanced Therapies for rare diseases and to work together to facilitate their availability and access. The conference will be attended by a group of highly qualified professionals, who will share their knowledge and experience, offering a comprehensive view from different disciplines.

During the day, key topics will be addressed such as:

  • Clinical advances and challenges in the field of advanced therapies.
  • Evaluation, financing and public purchase of these treatments.