"Numerous experts attended this event, which showed that rare and ultra-rare diseases constitute one of the sectors of Public Health in which cooperation between the different agents involved is most necessary. In Aragon, with an Autonomous Region Registry created in 2013, the population affected by one of the nearly 7,000 rare diseases currently catalogued is estimated at approximately 92,000 people. In global terms, according to data from the World Health Organisation in developed countries, the incidence of rare diseases is estimated to be approximately seven percent of the population.
Organised by the Spanish Association of Orphan and Ultra-Orphan Drug Laboratories (AELMHU), in collaboration with the Spanish Federation for Rare Diseases (FEDER), the Breakfast featured speeches by Mr. Luis Cruz, President of AELMHU; Mr. Francisco Jesús Gil, Area Coordinator of AELMHU; and Mr. Francisco Jesús Gil, Regional Coordinator of AELMHU. Francisco Jesús Gil, Area Coordinator of FEDER in Aragón; as well as representatives of the medical-health sector through Dr. Miguel Ángel Torralba, Internist at the Hospital Clínico Lozano Blesa, and Dr. Reyes Abad, Head of Pharmacy at the Miguel Servet Hospital. The Head of News at Aragón Radio, Ms. Carmen Ruiz, moderated the event".