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Artículos seleccionados

Artículo seleccionado

European Reference Networks for rare diseases: what is the conceptual framework?

Héon-Klin V. European Reference Networks for rare diseases: what is the conceptual framework? Orphanet J Rare Dis. 2017; 12: 137. Published online 2017 [DOI: 10.1186/s13023-017-0676-3].

Disponible en: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5547471/

Comentado por:

Marta Trapero-Bertran
Profesora titular e Investigadora de la Universitat Internacional de Catalunya (UIC)

Artículo seleccionado

Determining the value of medical technologies to treat ultra-rare disorders: a consensus statement

 

Schlander M, Garattini S, Kolominsky-Rabas P, Nord E, Persson U, Postma M, et al. Determining the value of medical technologies to treat ultra-rare disorders: a consensus statement. J Market Access Health Policy. 2016; 4: 33039 [DOI: 10.3402/jmahp.v4.33039]

Disponible en: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5087264/

Comentado por:

Marta Trapero-Bertran
Profesora titular e Investigadora de la Universitat Internacional de Catalunya (UIC)

Artículo seleccionado

Recommendations from the European Working Group for Value Assessment and Funding Processes in Rare Diseases (ORPH-VAL)

Annemans L, Aymé S, Le Cam Y, Facey K, Gunther P, Nicod E, et al. Recommendations from the European Working Group for Value Assessment and Funding Processes in Rare Diseases (ORPH-VAL). Orphanet J Rare Dis. 2017; 12: 50

Disponible en: https://ojrd.biomedcentral.com/articles/10.1186/s13023-017-0601-9

Comentado por:

Jaime Espín
Profesor de la Escuela Andaluza de Salud Pública

Artículo seleccionado

Sustainable public health systems for rare diseases

Ferrelli RM, Egle Gentile A, De Santis M, Taruscio D. Sustainable public health systems for rare diseases. Ann Ist Super Sanita. 2017; 53(2): 170-175.

Disponible en: https://www.ncbi.nlm.nih.gov/pubmed/28617266

Comentado por:

Marta Trapero-Bertran
Profesora titular e investigadora de la Universitat Internacional de Catalunya (UIC)

Artículo seleccionado

Orphan medicinal products in Europe and United States to cover needs of patients with rare diseases: an increased common effort is to be foreseen

Giannuzzi V, Conte R, Landi A, Ottomano SA, Bonifazi D, Baiardi P, et al. Orphan medicinal products in Europe and United States to cover needs of patients with rare diseases: an increased common effort is to be foreseen. Orphanet J Rare Dis. 2017; 12: 64

Disponible en: https://www.ncbi.nlm.nih.gov/pubmed/28372595

Comentado por:

Jaime Espín
Profesor de la Escuela Andaluza de Salud Pública

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